It has been almost 4 months now since my diagnosis 6/5/09. Two months ago I decided my treatment plan would be headed up by big lifestyle and diet changes, bolstered by hormone therapy and finalized with a round of proton beam therapy at Loma Linda which may be followed with more hormone therapy depending on PSA results. The diet and lifestyle changes are permanent.
So, I have lost about 30 pounds by simply walking a lot, riding my bike often and not eating anything with more than 3 grams of fat per 100 calories. No red meat and very little poultry. Lots of fruit and vegetables and some seafood.
For the past two months I have been on Trelstar, a hormone to block testosterone. PSA has fallen to 1.5 as of 9/29/09. My consultation at Loma Linda is scheduled for 10/6/09-10/7/09 and I hope to return mid-October through mid-December for the series of proton beam treatments.
I don’t play games like golf and tennis and as a California native have very little interest in the traditional attractions folks from out of state enjoy. Therefore, while I am in Southern California I will be working on a petition drive to put an initiative on the 2010 ballot to end cannabis prohibition and save California. http://CaliforniaCannabisInitiative.org. This useful diversion will keep me busy and therefore is a big part of my treatment plan.
So that’s my PCa update for now, I feel good and am very optimistic about my plans. I am fortunate indeed!
To live well, to laugh often, to love much, to gain the respect of intelligent people, to win the love of little children. To fill one’s niche and accomplish one’s task, to leave the world better than one finds it whether by an improved flower, a perfect poem or another life ennobled. to never lack appreciation of earth’s beauty or fail to express it, to always look for the best in others, to give the best one has. To make one’s life an inspiration and one’s memory a
benediction. This is success.”
–Bessie Stanley 1904
It is about 7 miles from my house to Old Sacramento via the American River bike trail. I take this ride often but this time I brought a kit consisting of a little 8.5 x 11 sign frame with the California Cannabis Initiative logo in it, some California Cannabis Initiative petitions, a clipboard and some pens with me. I stopped at Staples and made 20 copies of the 4 on 1 page “Call to Arms” mini flier from the downloads page on CaliforniaCannabisInitiative.org. The clerk suggested green paper and using their paper cutter I quickly made 80 little handouts for about a buck. By the end of the day I was calling these little green slips of paper a prize because people seemed to like that.
I arrived in Old Sacramento around noon on Sunday, 9/13/2009. There weren’t a lot of people there but it was not empty so I set up my little sign on a table in a public space near the boardwalk where lots of people would pass by and started asking for signatures. Since I was using a public space there were no contracts to sign or permissions to get. I soon figured out the most effective line is simply “Legalize Marijuana” or “Petition to Legalize Marijuana”. I think with a big sign that says “Legalize and Tax Marijuana for Adults” I won’t even have to say much, people will line up to sign this petition, and often thank me for being there with it!
Over the course of about 4 hours I collected 20 signatures from Sacramento county residents and because Old Sacramento is a huge draw for tourists I got 18 from Alameda, Los Angeles, Merced, Orange, Placer, San Joaquin, Santa Cruz, Solano, Tulare, and Yolo counties. The most gratifying was a clean cut young couple with baby in a sling on dad’s chest that told me he was a police officer and all his co-workers would sign too.
Overall the response was excellent and I am pleased with my first day out. I came up 12 short of the goal, but hey, it was my first day. Based on today’s results I believe there will be some days with a hundred or more signatures. Yes, there were a handful who said no, and a lot of people didn’t respond at all, but I didn’t try to change anyones mind and was prepared to answer the questions some had. It was easy and fun, I look forward to doing this on a regular basis over the next 145 days, my personal goal is 1,000 signatures.
8/12/09 Bostwick Lab report – second opinion on biopsy. A) Right: Adenocarcinoma (Gleason Score 3+3 =6) involving less than 5% of the specimen. B) Left: Adenocarcinoma (Gleason Score 3 + 4 = 7) Involving 50% of the specimen. Gleason pattern 4 comprises 10% of the cancer. Perineural Invasion.
8/12/09 I had the dreaded colonoscopy and elected to skip the sedation. What a great decision that was! Honestly, I have had much worse experiences in a dentists chair! It was also really interesting and informative to watch the high resolution color video monitor of my innerds. I got the all clear call a couple days later and the most painful part of this medical procedure is the bill. Ouch – at least it satisfies my high deductible for the year, and I don’t have to do it again for ten years.
8/28/09 LabCorp PSA Test: 8.2 ng/mL (from 9.7 on 5/6)
9/2/09 Dr. C says PSA should have dropped more but we will wait another month and see. Meanwhile I had another 3.75mg Trelstar shot and next time it is to be a 3 month shot. I had some hot flashes during the month prior and this shot made my rump a little sore. I feel a bit odd, but nothing serious enough to stop my regular activities.
9/4/09 Loma Linda called and I am scheduled for my consultation on Tuesday, 10/6 and 10/7 to measure me up for my custom pod. They will then have me back a week to ten days later to begin the eight week series of treatments. So, mid October through mid December I will be in SoCal.